Research Framework
The shared architecture for RBD studies.
A reference structure covering study design, outcomes and reporting, so findings can be compared across sites and disciplines.
DiscoverInternational research initiative · placeholder
Bridging research,
care and lives.
RBD-IBI connects researchers, clinicians, patients and partners across continents to advance the science of RBD — and turn shared evidence into shared progress.
200tbc Partner institutions worldwide placeholder
150tbc Active research programmes placeholder
A shared mission, a connected science
RBD-IBI brings together research groups, health systems and patient communities under one shared framework, so that discoveries in one country can benefit people everywhere.
Our work spans the full research journey — from common protocols and shared datasets to clinical translation and public understanding — with equity and openness at every step.
Read more about our mission Our Framework
Common methodologies. Transparent research.
One interoperable approach for how RBD research is designed, run and reported across our partner network. placeholder
Clinical & Biobank Networks
Connected sites, pooled samples.
Partner clinics and biorepositories linked by common protocols, enabling larger and more diverse studies than any single site alone.
DiscoverData & Evidence Platforms
Curated data, reproducible results.
Open, documented datasets and living evidence reviews, governed under clear access and ethics conditions.
DiscoverCollaboration & Training
Growing the next generation.
Fellowship and exchange programmes that build research capacity in less-resourced settings, on an equal footing.
Discover The initiative timeline
The numbers picture will live here.
Values below are labelled placeholders. They will be replaced with confirmed figures by the RBD-IBI team — never invented.
00tbc Countries represented Across Africa, Europe & the Americas
00tbc Partner institutions Research & clinical partners
00tbc Active research studies Running across the network
00tbc Publications & resources Open evidence, openly shared
00tbc Patients & families engaged In research and design
Innovation
Ideas we are building next.
Four frontiers where the initiative is pushing methods and access. placeholder
Living evidence
Systematic reviews that update as the science moves, so guidance stays current.
Digital biomarkers
Remote, low-cost measures that broaden who can meaningfully take part.
Equitable cohorts
Recruitment explicitly designed around communities that are usually under-represented.
Open data culture
Shared, anonymised datasets with governed, fair access conditions.
For patients & families
We are here for people living with RBD — not just for the science.
If you or someone you love is affected by RBD, you may have questions and no easy answers yet. Our promise is simple: clear, trustworthy information in plain language, and routes to the help that exists.
What you will find here
placeholder Content for patients and carers is being written with patient partners and will cover:
- Plain-language explanations of RBD
- Finding a specialist or centre
- What taking part in research involves
- Support for families and carers
Resources
View all resources Publications, datasets & tools.
Evidence library
Curated reviews, guidelines and publications from across the initiative. placeholder
Browse publicationsOpen datasets
Anonymised, documented data with clear access conditions, ready for secondary research. placeholder
Access the dataPractical guides
Protocols and processes that help partner sites run studies to the shared standard. placeholder
See the guides Sustainability
Built to last, not built to fade.
A durable funding and governance model keeps the initiative useful long after individual programmes end — protecting data, relationships and trust.
Read more Partners
Working with institutions across continents.
A growing coalition of universities, health systems and philanthropy. placeholder
[Partner logo] [Partner logo] [Partner logo] [Partner logo] [Partner logo] Your organisation?
Get involved
Help shape what comes next.
Whether you lead research, deliver care or live with RBD — there is a way in. Start with the bridge.